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- What is Xywav like? : r Narcolepsy - Reddit
On Xywav, I get 7-8 hours of sleep per night and 4 hours of deep sleep That is, if my sleep tracker can be trusted This med has changed my life Waking up is no longer a struggle Xywav killed my napping superpower which is a double edges sword because sometimes I just realllly want a nap Drawbacks-I work full time in a very very rural area
- Lets talk about xywav : r idiopathichypersomnia - Reddit
To say that Xywav changed my life would be an understatement I went from taking stims and having high blood pressure, being borderline obese, and having no energy to do anything other than lay on the couch to taking Xywav with no stims, having energy most days, able to workout 3 - 4 times a week, having good blood pressure, losing 20 lbs, etc
- Ok, Ive now tried everything with Xywav : r Narcolepsy - Reddit
I started Xywav (3ml x 1) in August My sleep doctor started me on this dosage while eliminating the 30mg amphetamine tablets from my treatment I have been taking stimulants since 2006 well before I was diagnosed with IH I still take Vyvanse 70MG daily but my doctor wants to decrease to 50MG and may increase Xywav
- r Xywav - Reddit
Day before taking xywav for first time: Woke up tired after full night's rest and sleeping late Had stupid and lucid dreams all night long Too tired to go to gym Too tired for social interactions beyond partner and being around the public Last food at 10pm First night taking xywav, 6 22: Took xywav 2 25g at 11:20 Didn't sleep much if at all
- Started Xywav 3 weeks ago, losing my patience : r . . . - Reddit
I'm on Xywav twice nightly and 4 hours is the maximum time I'm allowed to wait to take the second dose after taking the first (regardless of how long it takes for me to fall asleep) Taking the second dose past 4 hours could be the cause of feeling groggy during the day
- Xywav : r idiopathichypersomnia - Reddit
Xywav has helped a lot! Try not to get weirded out about how you feel when it kicks in if you haven’t fallen asleep yet Think of it as just getting high, which people do anyways with other drugs, and enjoy the feeling until you fall asleep
- Interested in Xywav experiences of IH patients efficacy . . . - Reddit
I’m interested to hear from fellow IH patients who have been prescribed Xywav (lower sodium oxybate) [Xywav has been deemed by FDA as therapeutically “identical” in drug mechanism as its predecessor of 20 years, Xyrem, but with 92% less sodium, which is a compelling feature for Xywav over Xyrem ]
- Anyone have opinions on Xywav? : r Narcolepsy - Reddit
Xyrem xywav cost $$$ but there is a patient assistance program (if you have insurance) that brings it down to $35 month That's how we can afford it and you'll be able to as well If insurance denies xywav, appeal a few times, and if still not covered, Jazz has a program for you where you can get it for little or no cost
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